TECHNOLOGY AND THE LAW
Swartz “Steals” for Science
The indictment of internet activist Aaron Swartz for allegedly downloading 4.8 million articles from JSTOR under a guest account raises questions
TECHNOLOGY AND THE LAW
The indictment of internet activist Aaron Swartz for allegedly downloading 4.8 million articles from JSTOR under a guest account raises questions
WEISS'S NOTEBOOK
It will be an uphill battle to justify some of the upfront costs of the personalized medicine revolution, given the technical, political, and educational hurdles that stand between where we are and where we want to get: to a place with better care that costs less.
The United States lags behind Europe in terms of genetic privacy legislation, argues a commentary in this week’s Journal of the American Medical Association, but we can use European experience to guide future policy that builds on the Genetic Information Non-discrimination Act.
GENETICS
Various companies now offer direct-to-consumer genetic counseling. Public concern about genetic discrimination is on the rise. The Senate may soon vote on the Genetic Information Nondiscrimination Act. But there are many uncertainties to consider as genetic medicine gets increasingly personal.
Genetic nondiscrimination legislation has been around since 1995 and has been introduced in both chambers of every Congress since then. It’s time to pass the bill and protect patients.